About

My name is Carson Paige Dickens. Born and raised in good ole’ Texas. I’m a wife and (new) mother to a baby boy just diagnosed with Cystic Fibrosis. We are taking it one step at a time. Now that I may have to be a stay at home Mom for a while, blogging is gonna be my number one hobby. I’ll blog about all of my hobbies and interests, which is like, everything. Who can pick just ONE hobby?? If I had to pick it would be testing beauty products.

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7 thoughts on “About

  1. My prayers are with you, your baby and family. Stay strong, I can not imagine having one so young with CF. Look online there are many facebook pages my wife was a member of that can help you through any questions. There are many parents out there going through this and will be able to offer guidance to you. If you have any questions I can lead you in the direction of sites my wife was a member. They are very knowledgeable, but know this, they will vet you, they do not want posers on the sites, many have been uncovered. I warn you of this so you do not get discouraged if at first they seem a little stand offish. My wife was one who did backchecking on some that seem questionable, but it was for the good of the community so that proper information to people who need it was happening.

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  2. Hello, I hope you and Jude are well! As a 20-year-old college student with CF, I just wanted to offer and ear if you ever need to vent about your experiences with CF or have any questions about what it’s like growing up with it.

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      • Hi, sorry it’s been so long! It would take a looong time to go through the specifics of the health problems I’ve dealt with so far, but overall I’ve been fortunate enough to stay pretty healthy. I’ve been on Orkambi for about nine months now, which has made a difference as well 🙂 right now, I’ve gone over a year without a hospitalization (my normal used to be an admission every 5-6 months) and I’m currently in the middle of transitioning from pediatric to adult care.

        One of the biggest things that’s made a difference for me healthwise (besides compliance) is staying physically active – I ran cross country and track in high school, but then I didn’t run consistently in college until this summer and I feel better just from that change than I have in two years! It doesn’t have to be running, but anything your little boy enjoys doing once he gets old enough will be great for his lungs. 🙂

        I’m honestly not great about checking wordpress consistently, but I’m better on other social media- if you’d like to connect through Facebook, Twitter or Instagram just let me know! There are lots of great CF communities on them as well and it’s a great way to stay up to date on research and other CFers as well.

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      • Thats great that you’ve gone a year with no hospital-twice a year admissions is alot 😦 I’m making sure my son exercizes already. He loves swimming and hes already super active, but that might be the albuterol making him hyper. I will for sure make exercize a priority with him. I don’t check wordpress much myself either. I’d love to friend you on Facebook 🙂

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  3. Sorry again for being behind on replies! I just added a Facebook widget (that may or may not be actually working, I’m not sure) that you can find on the bottom of my page, or if you go to my ‘about’ page you can just search my name – I’m pretty easy to find. If you still feel like connecting feel free to reach out and chat on there anytime! 🙂

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